Guest Post {comiENZO + Potter’s Syndrome}

I think I lost a lot of my fear when we said goodbye to Jenna, of course new fears were introduced but the fears I had of failure and letting go and just completely throwing myself into what I believe it- that fear vanished. It amazes me to no end – the things that I’ve watched so many women accomplish since experiencing the death of a child. Milena started a nonprofit, comiENZO in her son’s memory to help other families going through similar experiences called.

Amazingness. This is her story…

My name is Milena Iribarren. I am 22 years old and from Buenos Aires, Argentina. I am the proud mother of my beautiful son, Enzo. Being the mother to an angel is no easy task but I like to see it as: “ it truly takes a special woman to be the mother of an angel ♥ ” I am honored to have this difficult task upon me because without it, I wouldn’t have met my son. I wouldn’t have become a mother, and I wouldn’t have known what love is all about. I welcome all of you brave souls to this magical yet chaotic world of angel babies. 

comiENZO is solely run by me. I do have volunteers and family members who will help out along the way. comiENZO’s family includes:

Milena Iribarren- Enzo’s mother & Evie Iribarren (Enzo’s grandmother)

comiENZO
The Enzo Iribarren Foundation is a non-profit organization dedicated to helping grieving families through publicly speaking of my own personal experience in losing my son, Enzo. It will be meant to raise money for Potter’s Syndrome research and awareness as well as for projects aimed for grieving families and their angels.

comiENZO The Enzo Iribarren Foundation will be a safe haven for all families who have lost an infant due to Potter’s Syndrome, stillbirth, SIDS, and many other unfortunate syndromes, diseases, and causes.

Comienzo means beginning in spanish (my native language) and it also has my son’s name in it. I hope that through this organization, we can all find a new beginning to our lives that have been forever changed by our angels.

comiENZO’s main goal is to provide resources, hugs, words of wisdom, experiences, emotions, love, research, awareness, information, support groups, memoirs for our angels, among other helpful and necessary factors to dealing with our new lives as parents, grandparents, siblings, aunts, uncles, cousins, relatives to our beautiful angels.

comiENZO will be distributing memory boxes to hospitals filled with a gender specific outfit (that will fit the baby, no matter how big or small), hat, blanket, disposible camara, an angel statue, candle, a teddy bear (so the mother will not have to leave the hospital empty handed), and other necessities that may be needed to capture those everlasting moments with your child.

comiENZO will also be conducting fundraisers in which all of the money will be donated for Potter’s Syndrome research.

comiENZO will be arranging groups to teach about Potter’s Syndrome and baby loss in general. These groups will be for support, education, and strength to the many of us who suffer with the loss of our newborn children.

comiENZO will be a foundation in which I will publicly speak of my own personal struggle with losing my love, my life… my newborn son, Enzo. I will share his amazingly beautiful story and my every day pain of being the mother of an angel. We are still mothers and we will always be… no matter where they are. How high up, how far away, or near that they may be… we are their mothers always. I will share my own before, during and after feelings and emotions of baby loss.

A children’s hospital in Iowa is currently studying Potter’s Syndrome and takes donations in order to advance their findings. The money we will acquire will go directly to the University of Iowa Children’s Hospital.

For more information about the Potter’s Syndrome Memorial Research Fund, please contact:

KELLEY CLARKE
Potter’s Syndrome Memorial Research Fund
Department of Pediatrics
University of Iowa Children’s Hospital
2612 JCP
200 Hawkins Drive
Iowa City, IA 52242-1083

Visit comiENZO at:

www.facebook.com/enzo2807
www.enzoiribarren.weebly.com
enzo.leandre@hotmail.com

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Comments

  1. 1
    1

    God love you and bless you on this journey… How incredible your mission is being Enzo’s mommy! much love & hope ~ Lori

  2. 2
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    Drea says:

    That is one heartbreaking, but inspiring story. I admire Milena Iribarren for being able to do something good out of her saddening experience.
    Drea recently posted..kids costumesMy Profile

  3. 3
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    Enzo's Mom says:

    Please visit comiENZO’s website! We are very eager to begin our non-profit organization to help grieving families! We offer support, resources, memoirs, and love. Thank you!

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